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Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged and understood.

Thanks to photographer Xin Li and to artist Stephanie Sicore for their respective illustrations and photos.

ttc | pregnancy | birth after loss > Testing after recurrent miscarriages?

I am just hoping to find someone who went through testing after suffering recurrent losses. I am trying to get referrals for a reproductive endocrinologist and a geneticist, it's just taking my MD forever to get the referrals in...trying to be patient in the mean time

I've had three recurrent losses all between 9-10 weeks. I have one living child who was born prematurely at 31 weeks due to premature rupture of membranes, and I was never given definitive answer as to why that happened.

If anyone went through testing, could you just tell me what to expect, or what to try to ask for with testing? Anything would help. Thanks so much
February 24, 2022 | Unregistered CommenterH
I did some testing. For me there were two things: one was a simple blood draw, where they looked to see if anything genetic on my side could be causing anything. But, perhaps more significantly, I have a uterine anomaly (my uterus looks like bunny ears instead of an oval. I also had a septum (a piece of tissue in the middle of it), and some fibroids. This was discovered by ultrasound, and confirmed via MRI. I had to have a procedure to get the septum removed. I had to insist after an ultrasound tech told me my uterus “looked funny”…my doctors were quite dismissive. In the end, I changed doctors and consulted an MFM. Good luck.
March 5, 2022 | Unregistered CommenterAB
Hi H,

I have had 2 missed miscarriages and have found most contact with the medical system to be fairly challenging and sometimes dehumanizing. It also feels so frustrating when I feel like I need to sort through what needs to be done myself because of course I'm not the expert. I had to request a referral to a recurrent pregnancy loss clinic (that I found just from googling) and then remind the OB to send it a few times. Most of my tests have been blood tests and my husband had some blood tests as well, checking for karyotypes and any conditions that might affect fertility like thyroid challenges. I also had an HSG where they inject a dye into your uterus and do an x-ray. This test was to see the shape of my reproductive organs for any abnormalities. It was fairly painful but so brief. The worst part was probably having yet another stranger in between my legs. Now the next step is to try again and see what happens, which is of course very scary and stressful.

I hope this was somewhat helpful. I completely understand feeling lost or unsure about next steps in the medical system, or feeling alone in figuring it out.
April 7, 2022 | Unregistered CommenterC