Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged and understood.
Thanks to photographer Xin Li and to artist Stephanie Sicore for their respective illustrations and photos.
I guess I should be here now, although we aren't trying yet. I have an appt with a fertlity dr. to start the process of IVF with PGD in Chicago. My DH and I both carry the gene for a fatal genetic disease and we have a 25% chance of passing it on to our children. That is why the IVF and PGD. The cost is high the chances are low but I don't think that we could knowingly go through losing another child to this disease. Is anyone else going throuh IVF? Anyone else carriers of stuff?
Hey Kara, I think you responded to my post about this a few months ago. We were looking at IVF with PGD, although now it's looking like we are probably not carriers of any of the things we thought we might be (although lord knows about all the things they don't know about). My cousin has a 4 year old daughter with cystic fibrosis and they have not decided whether or not to have another child, but I know they are considering IVF with PGD if they decide to go forward. I would be really interested to hear about your experience, and I hope you get a sweet healthy baby very soon! xoxo
Your situation is EXACTLY the kind of thing that IVF w/ PGD is fantastic for.
My son's congenital defect syndrome may possibly be a genetic thing, not enough is known about it, and no genes have been identified so PGD won't help. We'll find out if it was genetic and not cosmic bad luck if we have another child with the syndrome. So being able to imagine the situation you are in, in that case I would love for something like PGD to be an option on the table.
My son's congenital defect syndrome may possibly be a genetic thing, not enough is known about it, and no genes have been identified so PGD won't help. We'll find out if it was genetic and not cosmic bad luck if we have another child with the syndrome. So being able to imagine the situation you are in, in that case I would love for something like PGD to be an option on the table.