Has anyone who experienced Baby Loss here also been diagnosed with a Thrombophilia (blood clotting disorder) after your loss? My daugher, Paige, is 2 1/2 and was a miracle! I had a placental abruption with her, but we both survived. My son, Tucker, was still born after 35 weeks. Finally, a doctor stepped in and after giving 16 tubes of blood, I was diagnosed with a mutation in my blood that is genetic. This condition can also cause miscarriages before a live baby. I am currently taking daily baby Aspirin, and daily Lovenox injections...

Just wondering if anyone else has this diagnosis? Or if this would help anyone who is having trouble with Baby Loss. Obviously, my other Doctors never looked into this!

My OB did the clotting panel because of the bleeding/clotting issues (and placental malformation issues) in Gabe's pregnancy. Came back clear, save for a heterozygous MTHFR mutation, which isn't a direct clotting disorder. What happens with MTHFR is that it can affect the body's ability to absorb certain b-vitamins, which can in turn affect the homocysteine levels in the blood, which can in turn affect the body's ability to clot (resulting too much clotting).

I also take baby aspirin daily and high doses of B6, B12 and folic acid.

It's good that your doctor checked into it and that you did find an answer. It's often not done until there have been multiple losses, because there can be so many other reasons for losses. Which, in many ways, is unfortunate.

Do you feel better for having received this diagnosis and treatment plan?

i found out about a blood clotting disorder after our loss (sadly i do not know the exact name though.) i had a pre-pregnancy consultation with a maternal fetal medicine doc and she ordered 17 viles worth of tests. after a second test, it was confirmed.

as for treatment, she told me that i should start taking baby aspirin and once we become pregnant again i will be put on a blood thinner.

but oh silly my, i thought a blood thinner would be, you know, a pill. oh no, i have to take do a twice daily injection (heparin.) i am only on day four of the injections, but am finally feeling a little more confident with the process.

as far as connecting the dots between my sons stillbirth and this blood clotting disorder, no one knows. his cord was wrapped around his neck, however the placenta tests showed it was VERY small. just following doctors orders at this point…

I have also been diagnosed with Antiphospholipid Antibody Syndrome and it was given as the reason for five miscarriages and my placental abruption with my daughter. During pregnancy, I too take heparin injections and baby aspirin and will be on baby aspirin for life. I think more and more doctors are becoming aware of immune problems and clotting disorders as a cause of pregnancy loss, thank goodness. I know I was my doctors first patient with APS and she had no idea how to treat me, as a result I was referred to MFM and a haematologist at Women's Hospital who had experience in dealing with APS in pregnancy. Heparin injections are believed to lead to an 80% chance of a live birth in women with clotting disorders, I know the only two times I have carried on to have live babies it was because of being on the heparin. Best wishes for you pregnant mamas out there dealing with these disorders. Many hugs...

MTHFR c667t here. 2 dead girls. One healthy, happy, "me-do-it" phase boy. I like to think to myself that it should really just read like a license plate, MTHFKR c667t, and the disorder name would be more honest.

I was told by the hematologist that generally they only test for clotting problems if there is hydranencephaly or serious (7+) number of miscarriages. The clotting tends to be greater with girls than boys on mine, due to hormones. Also means that I have had to carefully, carefully consider whether hormonal contraceptives are okay, since they up the chances of throwing clots. Lovely. So due to my weight and the clotting disorder, we're now on a fairly ineffective contraceptive and I'm having to face the possibility that intentionally or not, I could conceive since I can't consider something like an IUD and am not sure whether I can face going ahead and getting sterilized before I'm even thirty when we'd planned on having four kids. Keep thinking too that I'm thinking too much about it, I'm made sadly to be extra fertile (the first baby was conceived while I was on low-dose hormonal contraceptives) probably due to the odds that I would lose that many more babies, apparently this is very common genetically among several ethnic groups, traditional warrior societies for the most part, perhaps if you're out there fighting then it's an advantage to stop bleeding faster than usual.

Oh yeah, it is probably the same MTHFR as the heterozygous above, just the homozygous version. Luck of the Irish takes on a whole new meaning here.

Yes, it is nice to have an answer. I don't want something to be wrong with me, but most people don't get a "why" so I am grateful for the Doctors who did this test, and are being aggressive with me now. I do have a version of MTHFR, as well as Protein S, and another auto-immune disorder called "APA" which is not Lupus, but is carried by people with Lupus.

The injections are not fun, but I would take a million a day to have my baby.

It's just a blood test! I don't know why more Docs don't do it!