My son died a year ago. He lived for three months. In those three months he endured extreme pain, 5 brain surgeries and countless other procedures.. My son died with an IV in his head because every other access point was blown. My sons precious and perfect body was destroyed.

I have since returned to work, I can even entertain light conversation. I've returned to running, I write and make music. I write poetry. I search. Myself and this world all goddamn day. But every minute of every day I return to the fact that it took all day for my beautiful child to pass, that he suffered for his entire short life, he never felt sunlight and he died with an IV in his head.

I am so sorry, Hannah! I wish I could ease some of your pain.

I am so sorry Hannah. It is so terrible. I am also haunted that my daughter's very short life was only pain. If she had lived I could reconcile this with being the only way she could survive but as she didn't it was her only experience.
It is also in the background of all I do.