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Parents of lost babies and potential of all kinds: come here to share the technicolour, the vividness, the despair, the heart-broken-open, the compassion we learn for others, having been through this mess — and see it reflected back at you, acknowledged and understood.

Thanks to photographer Xin Li and to artist Stephanie Sicore for their respective illustrations and photos.

for one and all > Very sensitive topic... What to do with the milk

I read the article about stopping lactation. Is it just me though, or has anyone else decided to keep it going and donate the milk? I have been hand expressing for three weeks. Today I borrowed a pump just to see what would happen. I think I will find it helpful to give someone this gift. So I was just wondering about anyone's experience. `Cuz if you Google "pumping after stillbirth" you really get a good look at how alone you are in the world...
February 24, 2010 | Unregistered CommenterSadkitty
What a thoughtful thing to do, Sadkitty. Truly, you are far more brave and selfless than I. I did everything I could to prevent my milk from coming in. I was so scared of it, afraid that the stark reminder would drive me over the edge.

I wish I had some advice as to where to donate the milk, but I have no information about that. Just wanted to tell you how much I admire you.
February 24, 2010 | Unregistered Commenterscm
Thanks.
I wasn't sure I wanted to do it at first. I hand expressed anyway, just because I wanted that physical proof that I had given birth. I don't know how much I would be able to get. I did set out to dry up, but then I realized that this was something my body did right. Something that might keep someone alive. I have two living children (out of 5 pregnancies) that I nursed for 3.5 years each. So, making milk is old hat to me. I have ideas of where to donate. I just have to see if I can get enough for them to bother with. But, watching the milk come out is soothing in a weird way.
February 24, 2010 | Unregistered CommenterSadkitty
Sadkitty,

I know you are new here, and I wanted to say I'm so sorry for your loss and for having to join us here. I know there is an association that takes donated milk for babies in the NICU, as breastmilk has so many benefits for these sick babies. I'm sure you could info just by Googling it.

I agree that your consideration of continuing to pump and possibly donate is such a selfless thing to do. I have not been in your shoes with donating milk, but I did have to pump exclusively for my son due to him being a preemie. Please feel free to email me if you're looking for advice on full-time pumping, It's a big commitment, but can be done.

I hope that this is a legacy you feel you can continue for your precious baby.
February 24, 2010 | Unregistered CommenterEve
my email is eve_62025@yahoo.com
February 24, 2010 | Unregistered CommenterEve
I'm so impressed by your strength. I wanted to pump and donate after Micah was stillborn. I went as far as talking to the lactation consultant at the hospital about donating and pulling the pump out of the attic, but when my milk came in, I just needed it to go away, so I never pumped. I couldn't commit to such a constant reminder of loss, as much as I loved the idea of doing something good for a living baby. You are doing an incredible and selfless thing.
February 24, 2010 | Unregistered Commenterturtle
That is exceptionally thoughtful of you. What a lovely gift.

It's not something I did, or considered. We had no pump and while I got engorged and leaked, it was never a great amount. I hadn't even realized I could produce milk at that point; no one had told me. I just wanted the pain in my breasts to stop and never gave thought to whether they could be coaxed to produce milk and donate.
February 24, 2010 | Unregistered Commentereliza
I also think this is an incredible thing for you to do. I pumped for the 4 days Matilda was alive and asked about donating that milk (she only ever got to have 6ml of it and I producing a lot on the last couple of days) but the only milk bank in the state wasn't taking milk at that time. It would have loved for someone else to have been able to have it.

I seem to be an objection but the leaking sore boobs didn't worry me that much afterwards. While Matilda was alive, pumping was one of the few things I could do for her so I had a positive association with it. And it was a physical reminder I'd had a baby. That fact was very surreal to me in the first week or so after she died. I used to look at the photos all the time to make sure it wasn't all a dream.
February 24, 2010 | Unregistered CommenterMaddie
Sadkitty, what a lovely, lovely thing to do.

I lost my baby at 13 weeks but didn't find out until 17 weeks, so I didn't get properly engorged or anything, but I did leak milk for a week or ten days afterwards. It made me sad, but it reassured me - my body didn't understand what had happened, which made it easier for me to accept that my brain couldn't understand, either.

I was sad when it went away.

I'm so sorry you lost your baby. This shouldn't happen to anyone.
February 25, 2010 | Unregistered CommenterB
Sadkitty,
You are noble and great. Try a local NICU or lactation consultant at a public health unit.
There was an article in the Oprah magazine roughly 6 months ago about a woman just like you. She had access to a national organization who (greatfully) accpeted the milk for premature infants. Do you live in the states?
The first few months of grief are such hard work. I am impressed by your selflessness and determination.
February 25, 2010 | Unregistered Commenterdiana
First of all, Sadkitty, welcome. I am so sorry you have a reason to be here, but I am glad you found us.

I think you are referring to the article on our sidebar about lactation (http://www.glowinthewoods.com/how-to-stop-lactation/) in your post. At the bottom there is a piece on donating milk.

Unfortunately, there are pretty high barriers to donating to the milk banks that supply NICUs (for example, they won't take my milk because of where I lived when I was 12 years old). But if qualify and you are willing to jump through those hoops, that's the most reliable official route.

There are also private companies that collect milk (milk depots), and we discuss one famous one in the article. Personally, I don't find their practices ethical, particularly what I find to be deceitful description of their program for mothers whose babies die. They imply that the milk goes to help children, but in fact it goes to a biotech company.

I would really encourage you to look into person-to-person donation. Here's a newly set up forum for the system that we discuss in the article: http://milkshare.forumotion.com/ . They used to run on email lists, but this forum setup looks much easier and friendlier. I have a friend who has used this particular organization a number of times to donate (including in my son's name, and the recipient family sent me a thank you card later, which touched me beyond words), and has only good things to say about it.

I know this must seem a very lonely thing to attempt. We all respond in different ways, and it does seem that most of us have chosen to stop lactation. But I oh, so understand the impulse. I was very tempted to pump myself. In fact, had our friends who had premature twins just weeks earlier been back in town by then (they were born to their surrogate out of state), I very well might have done it. In the end I didn't, in large part because I didn't think my husband and my daughter would handle it very well. But I do so very much understand.

Please let us know what you decide and how it goes for you. ok?
February 25, 2010 | Registered Commenterjulia
It never occurred to me that I could donate my milk after Gabriel died. it was so very painful to be engorged after what I had already gone through. Sadkitty, that is a beautiful thing you are doing, and I hope you get the resources and support you need.
February 25, 2010 | Unregistered Commenterred pen mama
Hi, i donated my milk for 6 weeks after Florence died. Here in the UK, while it's not easy to donate milk, it is possible through http://www.ukamb.org/
I knew immediately that I wanted to donate, and said so to the midwife taking care of us, my baby barely cold in my arms.
For me, it was powerfully healing, something I needed to do, physical proof of my having given birth and if I couldn't feed Florence, then at least my milk could nourish another baby.
my local hospital breast feeding specialist was useless, but my contacts with LLL and my own research led me to donating to a hospital just around the corner from where my husband works, so he could take the milk in.
I did go in once and to see those freezers full of milk donated by mothers just warmed my heart.
I hope you can find a way to donate. I realise my experiences here in the UK are probably very different to yours, but maybe someone reading this might find my experience helpful.
Good luck, and I hope donating is as healing for you as it was for me.x
February 26, 2010 | Unregistered CommenterJeanette
Well, so far I'm just barely getting enough to cover the bottom of a bottle. I think it's still colostrum too, as it is bright yellow and thick as heavy cream. I don't know how useful I will be to someone else, but I still find it very soothing and healing to try. It's not for everyone, but I cherished nursing my other two children and I will miss the milk when it is gone.
February 26, 2010 | Unregistered CommenterSadkitty
Sadkitty - that is an amazing thing you are doing. I wanted to donate but I was on so many medications that I was pretty sure I would do more harm than good. I hope you find some support and that it helps you in your healing.

I was sad when my milk stopped - it was my last physical sign of my baby. It would have been nice to keep it going for awhile.
February 26, 2010 | Unregistered Commenterjen